International Registry for Mechanically Assisted Circulatory Support (IMACS)

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IMACS Registry Steering Committee

Five people posing for a photo at ISHLT2023 in Denver

The IMACS Registry Steering Committee is responsible for the oversight of the registry's operation and monitoring its ongoing progress.

The International Society for Heart and Lung Transplantation Registry for Mechanically Assisted Circulatory Support (IMACS) is an international registry intended to enroll and follow patients who receive durable mechanically assisted circulatory support devices (MCSD) in all countries and hospitals that wish to participate. Durable devices are defined as those devices that are capable of allowing patient discharge with the device in place. Devices are defined on a country by country basis. The registry will record pre-implant patient information, device information and will track the major post implant clinical events.

Mission

Purpose and Goals

Goals

The primary goal of the IMACS Registry is to create, implement and analyze a registry that contains high standards for complete enrollment of patients and complete and accurate submission of MCSD data that allows participating centers to engage in important outcomes research about mechanical support devices.

Purpose

To capture worldwide data relating to the implantation and outcome of patients receiving cardiac assist devices designed for and capable of use for 30 or more days
To identify risk factors for complications
To improve patient selection and management before and after device implantation
To generate predictive models of outcome for given patient profiles
To generate statistical analyses of the data that can be used as the underlying evidence/ justification for government agency funded studies and clinical trials
To identify overall and best practices with the aim of improving current practices

Why Participate in IMACS?

Benefits to Centers

Statistical summaries of hospital experience
Benchmarks for comparison against the international experience
Description of performance standards for units and practitioners
Determine resources (personnel, skills, training) needed to meet performance standards
Participate in device research
Generate volume and trend data to facilitate short and long term financial planning

Benefits to ISHLT

Own and direct an international high quality MCSD registry
Complement the ISHLT transplant registry as ISHLT emphasizes its role in MCSD research
Provides Statistical Reports and Research Analyses to ISHLT Researchers

Benefits to the MCS Community

Improved outcomes from new techniques and devices
Facilitate accelerated evaluation of new devices
Development of international standards for MCS therapy

Data Coordinating Center

The Data Coordinating Center (DCC) for the IMACS Registry is Kirklin Solutions. Kirklin Solutions hosts the database and manages the collection and analysis of the data. Questions about the IMACS Registry and the data submission process may be directed to info@kirso-admin.net.

Registry Resources

IMACS Registry Steering Committee Charter

Composition, aims and responsibilities for the IMACS Registry Steering Committee.