Patient Resources

Below are links to website sources for general medical information and resources.

• World Health Organization (WHO)
• World Medical Association
• American College of Chest Physicians
• ELF: European Lung Foundation
  (brings together patients, the public and respiratory professionals to positively influence respiratory medicine)
• Medscape.com
  (health education and information)
• WebMD
  (health information site)
• Healthfinder.gov
  (U.S. health information resource site; English and Spanish)
• U.S. National Library of Medicine (NLM)
• U.S. National Institutes of Health (NIH)
• ClinicalTrials.gov
  (registry of federally and privately supported clinical trials conducted in the U.S. and around the world)
• U.S. Centers for Disease Control and Prevention (CDC)
• U.S. Food and Drug Administration

Below are links to the websites of organizations who specialize in general medical fields related to transplantation.

• American Association of Critical Care Nurses
• American Association of Thoracic Surgeons
• American College of Cardiology
• American College of Surgeons
• American Heart Association
• American Lung Association
• Association for European Cardiovascular Pathology
• Banff Foundation for Allograft Pathology
• European Association for Cardiothoracic Surgery
• European Society of Cardiology
• Heart Failure Society of America
• Pediatric Heart Transplant Society
• Pulmonary Fibrosis Association
• Society for Cardiovascular Pathology
• Society of Thoracic Surgeons

Below are links to website sources for Information and education regarding heart and lung transplantation and organ donation.

• National Foundation for Transplants
  (fundraising assistance)
• MedlinePlus
  (articles, news, information, policies regarding heart transplantation in the U.S.)
• TransWeb.org
  (resource on transplantation and donation from the University of Michigan Transplant Center)
• HelpHOPELive
  (helps families address financial hardships arising from uninsured medical expenses related to transplantation and catastrophic injury)
• INTERMACS - The Interagency Registry for Mechanically Assisted Circulatory Support
• PEDIMACS
  (the pediatric portion of INTERMACS)
• EUROMACS - European Registry for Patients with Mechanically Circulatory Support
• MyLVAD Foundation
  (support for patients and caregivers who have end stage heart failure and require MCS support)

Below are links to the websites of organizations related to transplantation.

INTERNATIONAL

• International Society for Heart and Lung Transplantation (ISHLT)
• World Health Organization (WHO)
• World Health Organization GODT (Global Observatory on Donation & Transplantation)
• International Transplant Nurses Society (ITNS)
• The Transplantation Society (TTS)
• Transplant Recipients International Organization
• International Pediatric Transplant Association (IPTA)
• Declaration of Istanbul

EUROPE

• Eurotransplant
  (responsible for the mediation and allocation of organ donation procedures in Austria, Belgium, Croatia, Germany, Luxemburg, the Netherlands and Slovenia)
• Scandia Transplant
• European Society of Transplantation (ESOT)
• European Heart and Lung Transplant Federation
• Austria:
  Austrotransplant
• Estonia:
  Tartu Hospital University
• France:

  • Agence de la Biomédecine
  • French Federation for Organ Donation
• Germany: Deutsche Stiftung Organtransplantation (DSO)
• Greece: Hellenic National Transplant Organization
• Italy: Centro Nazionale Trapianti (CNT)
• Netherlands: Nederlandse Transplantatie Vereniging
• Poland: Poltransplant
• Romania: National Transplant Agency
• Slovakia: Slovaq Centre on Organ Transplantation
• Slovenia: Slovenija Transplant
• Spain: Organización Nacional de Trasplantes (ONT)
• Sweden: Swedish Council for Organ and Tissue Donation
• Switzerland:

  • Swisstransplant for Solid Organ and Partial Tissue
  • Swiss Blood Stem Cells for Cells
• United Kingdom: UKTransplant

NORTH AMERICA

• Canada:

  • The Canadian Association of Transplantation
  • British Columbia Transplant Society
• Cuba: Grupo de Coordinación Nacional de Trasplantes
• Mexico: Centro Nacional de Trasplantes (CENATRA)
• United States:

  • Organ Procurement and Transplantation Network (OPTN)
    (the unified transplant network established by the United States Congress under the National Organ Transplant Act (NOTA) of 1984)
  • United Network for Organ Sharing (UNOS)
  • U.S. Government Information on Organ and Tissue Donation and Transplantation
  • American Society for Artificial Internal Organs
  • American Society for Transplantation
  • American Society of Transplant Surgeons
  • Children's Organ Transplant Association
  • Second Wind Lung Transplant Recipient Organization
  • Donate Life America
  • North American Transplant Coordinators Organization

SOUTH AMERICA

• Argentina: Instituto Nacional central Unico Coordinator de Ablacion e Implante
• Brazil: Associação Brasileira de Transplante de Órgãos
• Chile: Corporación Nacional de Trasplantes de Chile
• Colombia: Instituto Nacional de Salud
• Uruguay: Instituto Nacional de Donación y Trasplante de Células, Tejidos y Órganos (INDT)
• Venezuela: Sistema de Procura de Órganos y Tejidos

SOUTHEAST ASIA

• India: Directorate General of Health Services
• Myanmar: Department of Health

EASTERN MEDITERRANEAN

• Israel: Israel Transplant
• Pakistan: Sindh Institute of Urology and Transplantation
• Saudi Arabia: Saudi Centre for Organ Transplantation
• Tunisia: Centre National pour la Promotion de Transplantation d'Organes
• Turkey: Turkish Transplantation Society

WESTERN PACIFIC

• Australia & New Zealand:

  • Transplantation Society of Australia and New Zealand
  • Organ Donation and Transplantation Registry
• Japan: Organ Transplant Network
  
• Korea: Konos Korean Network for Organ Sharing