International Thoracic Organ Transplant (TTX) Registry

 
The International Thoracic Organ Transplant (TTX) Registry was created to provide on-going, current data regarding patient, donor, and transplant characteristics as well as post-transplant outcomes.  Our Registry is the only one of its kind.  All institutions and countries performing heart, heart-lung, and/or lung transplantation are invited to submit data to the TTX Registry.
 
As of early 2019, 45 centers have submitted data using our secure web-based data entry system, and 345 centers have participated through data sharing with the following Registry Partners: The list of participating collectives will be updated after the Registry relaunch in late 2021.
 
For those researchers who wish to conduct analyses of the Registry data or query the database, the Excel File links below provide the lists of data fields that the TTX Registry collected through early 2019. Please review these fields prior to submitting a data request form (visit TTX Registry Data Requests for more information).

The Excel file link below provides the data fields that will be collected with the TTX Registry relaunch in late 2021.
 
The Data Coordinating Center (DCC) for the TTX Registry is the United Network for Organ Sharing (UNOS). UNOS hosts the database and manages the collection and analysis of the data. Questions about the TTX Registry and the data submission process may be directed to ishlthelp@unos.org

See Also: Research Oversight Committee
 

Below are the Steering Committee Members who manage the TTX Registry

Click on any card below to enlarge for more information. Only ISHLT Members who are logged in can view contact information on the enlarged card.
 
TTX Registry Slides TTX Registry Enrollment TTX Registry Data Requests Data Request Form TTX Registry Data Upload True

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