Patient Resources

Links to other transplant-related sites are below for those of you seeking basic information about transplantation or other resources related to transplantation. This not a comprehensive list but a list designed to direct you to sites that do have very comprehensive links. We hope you find them useful.

GENERAL MEDICAL INFORMATION / ORGANIZATIONS

Below are links to website sources for general medical information and resources.

• World Health Organization (WHO) 
  www.who.int/en
  (Home Page)
• World Medical Association
  www.wma.net/e
• American College of Chest Physicians
  www.chestnet.org/accp
• ELF: European Lung Foundation
  www.europeanlung.org
  (brings together patients, the public and respiratory professionals to positively influence respiratory medicine)
• Medscape.com
  www.medscape.com
  (health education and information)
• WebMD
  www.webmd.com
  (health information site)
• Healthfinder.gov
  www.healthfinder.gov
  (U.S. health information resource site; English and Spanish)
• U.S. National Library of Medicine (NLM)
  www.nlm.nih.gov
• U.S. National Institutes of Health (NIH)
  www.nih.gov
• ClinicalTrials.gov
  www.clinicaltrials.gov
  (registry of federally and privately supported clinical trials conducted in the U.S. and around the world)
• U.S. Centers for Disease Control and Prevention (CDC)
  www.cdc.gov
• U.S. Food and Drug Administration
  www.fda.gov
• American Association of Critical Care Nurses
  www.aacn.org
• American Association of Thoracic Surgeons
  www.aats.org
• American College of Cardiology
  www.acc.org
• American College of Surgeons
  www.facs.org
• American Heart Association
  www.americanheart.org
• American Lung Association
  www.lungusa.org
• Association for European Cardiovascular Pathology
  http://anpat.unipd.it/aecvp/
• Banff Conferences on Allograft Pathology
  http://cybernephrology.ualberta.ca/Banff/
• European Association for Cardiothoracic Surgery
  www.eacts.org
• European Society of Cardiology
  www.escardio.org
• Heart Failure Society of America
  www.hfsa.org
• Primary Pulmonary Hypertension Cure Foundation
  www.PPHCure.org
• Pulmonary Fibrosis Association
  www.pulmonaryfibrosis.org
• Society for Cardiovascular Pathology
  www.scvp.net
• Society of Thoracic Surgeons
  www.sts.org

TRANSPLANT EDUCATION / INFORMATION

Below are links to website sources for Information and education regarding heart and lung transplantation and organ donation.

• CHF Patients.com
  www.chfpatients.com
  (Heart failure and heart transplant information and resources)
• National Foundation for Transplants
  www.transplants.org
  (fundraising assistance)
• MedlinePlus
  www.nlm.nih.gov/medlineplus/hearttransplantation.html
  (articles, news, information, policies regarding heart transplantation in the U.S.)
• TransWeb.org
  www.transweb.org
  A Resource on Transplantation and Donation (from the University of Michigan Transplant Center)
• HelpHOPELive
  www.helphopelive.org
  (helps families address financial hardships arising from uninsured medical expenses related to transplantation and catastrophic injury)
• INTERMACS - The Interagency Registry for Mechanically Assisted Circulatory Support
  www.uab.edu/medicine/intermacs
• Pedimacs - the Pediatric Portion of INTERMACS
  www.uab.edu/medicine/intermacs/pedimacs
• EUROMACS - European Registry for Patients with Mechanically Circulatory Support
  www.euromacs.org
• Pediatric Heart Transplant Study
  www.uab.edu/medicine/phts

TRANSPLANT RELATED ORGANIZATIONS

INTERNATIONAL

• International Society for Heart and Lung Transplantation
  www.ishlt.org
• World Health Organization (WHO)
  www.who.int/transplantation/organ/en
  (Organ Transplantation)
• World Health Organization GODT (Global Observatory on Donation & Transplantation)
  www.transplant-observatory.org
• International Transplant Nurses Society
  www.itns.org
• International Transplant Coordinators Society
  www.itcs.org
• The Transplantation Society
  www.transplantation-soc.org
• Transplant Recipients International Organization
  www.trioweb.org
• International Pediatric Transplant Association
  www.iptaonline.org
• DonorAction
  www.donoraction.org
• Declaration of Istanbul
  www.declarationofistanbul.org

EUROPE

• Eurotransplant International Foundation
  www.eurotransplant.org/cms
  (responsible for the mediation and allocation of organ donation procedures in Austria, Belgium, Croatia, Germany, Luxemburg, the Netherlands and Slovenia)
• Scandia Transplant
  www.scandiatransplant.org
• European Transplant Coordinators Organization
  www.etco.org
• European Society of Transplantation
  www.esot.org
• European Heart and Lung Transplant Federation
  www.ehltf.info/
• AUSTRIA: Austrotransplant
  www.austrotransplant.at
• CROATIA: Donor Network of Croatia
  www.hdm.hr
• ESTONIA: Tartu Hospital University
  www.kliinikum.ee
• FRANCE: 
  • Agence de la Biomédecine: www.agence-biomedecine.fr/fr/index.asp
  • French Federation for Organ Donation: www.france-adot.org 
• GERMANY: Deutsche Stiftung Organtransplantation (DSO) 
  www.dso.de
• GREECE: Hellenic National Transplant Organization
  www.eom.gr
• ITALY: Centro Nazionale Trapianti (CNT) 
  www.trapianti.ministerosalute.it
• LITHUANIA: Lithuanian Bureau on Organ Transplantation
  www.transplantacija.lt/content/nuorodos/lietuvoje.en.html
• NETHERLANDS: Nederlandse Transplantatie Vereniging
  www.transplantatievereniging.nl
• NORWAY: Rikshospitalet / Radium Hospitalet
  www.rikshospitalet.no
• POLAND: Poltransplant
  www.poltransplant.org.pl
• ROMANIA: National Transplant Agency
  www.transplant.ro
• SLOVAKIA: Slovaq Centre on Organ Transplantation
  www.ncot.sk
• SLOVENIA: Slovenija Transplant
  www.slovenija-transplant.si
• SPAIN: Organización Nacional de Trasplantes (ONT) 
  www.ont.es
• SWEDEN: Swedish Council for Organ and Tissue Donation
  www.donationsradet.se
• SWITZERLAND: 
  • Swisstransplant for Solid Organ and Partial Tissue: www.swisstransplant.org
  • Swiss Blood Stem Cells for cells: www.bloodstemcells.ch
• UNITED KINGDOM:
  • UKTransplant: www.uktransplant.org.uk/ukt
  • British Organ Donor Society: body.orpheusweb.co.uk/index.html

NORTH AMERICA

• CANADA:
  • The Canadian Association of Transplantation: http://www.transplant.ca
  • British Columbia Transplant Society: www.transplant.bc.ca
• CUBA: Grupo de Coordinación Nacional de Trasplantes
  www.sld.cu/sitios/trasplante
• MEXICO: Centro Nacional de Trasplantes (CENATRA) 
  www.cenatra.salud.gob.mx
• USA:
  • Organ Procurement and Transplantation Network
  http://optn.transplant.hrsa.gov (the unified transplant network established by the United States Congress under the National Organ Transplant Act (NOTA) of 1984)
  • United Network for Organ Sharing: www.unos.org
  • U.S. Government Information on Organ and Tissue Donation and Transplantation
  www.organdonor.gov• American Society for Artificial Internal Organs: www.asaio.com
  • American Society for Transplantation: www.a-s-t.org
  • American Society of Transplant Surgeons: www.asts.org
  • Children's Organ Transplant Association: www.cota.org/about/about_cota.php
  • Second Wind Lung Transplant Recipient Organization: www.2ndwind.org
  • Coalition on Donation: www.organtransplants.org/donor/coalition
  • Donate Life America: http://donatelife.net
  • North American Transplant Coordinators Organization: www.natco1.org

SOUTH AMERICA 

• ARGENTINA: Instituto Nacional central Unico Coordinator de Ablacion e Implante
  www.incucai.gov.ar
• BOLIVIA: Comision Coordinadora nacional de Trasplantes de Organos y Tejidos de Bolivia
  www.trasplantesorganos-bo.org
• BRAZIL: Associação Brasileira de Transplante de Órgãos
  www.abto.com.br
• CHILE: Corporación Nacional de Trasplantes de Chile
  www.trasplante.cl
• COLOMBIA: Instituto Nacional de Salud
  www.ins.gov.co
• URUGUAY: Instituto Nacional de Donación y Trasplante de Células, Tejidos y Órganos (INDT) 
  www.indt.edu.uy
• VENEZUELA: Sistema de Procura de Órganos y Tejidos
  www.ontv-venezuela.org

SOUTHEAST ASIA

• INDIA: Directorate General of Health Services
  http://mohfw.nic.in/dghsindex.htm
• MYANMAR: Department of Health
  www.moh.gov.mm

EASTERN MEDITERRANEAN

• EGYPT:
  • Directorate of Specialized Medical Committee Curative Care Sector MOH and Population: www.mohp.gov.eg
  • Egyptian Medical Syndicate: www.ems.org.eg
• ISRAEL: Israel Transplant
  www.health.gov.il/transplant/eng1.htm
• PAKISTAN: Sindh Institute of Urology and Transplantation
  www.siut.org
• SAUDI ARABIA: Saudi Centre for Organ Transplantation
  www.scot.org.sa/eng-index.html
• TUNISIA: Centre National pour la Promotion de Transplantation d'Organes
  www.don-organe.net
• TURKEY: Turkish Transplantation Society
  www.tond.org.tr

WESTERN PACIFIC

• AUSTRALIA and NEW ZEALAND:
  • Transplantation Society of Australia and New Zealand: www.tsanz.com.au
  • Organ Donation and Transplantation Registry: www.anzdata.org.au
• JAPAN:
  • Japan Organ Transplant Network: www.jotnw.or.jp/english/index.html
  • Japan network for Organ Sharing: www.nms.ac.jp/FromNMS/JIN/SERVICE.html
• KOREA: Konos Korean Network for Organ Sharing
  www.konos.go.kr
• MALAYSIA: National Transplant Procurement Management
  www.hkl.gov.my
• SINGAPORE: National Organ Transplant Unit
  www.moh.gov.sg/mohcorp/programmes.aspx?id=1676