The iPHFR will provide the information to enable all children with heart failure to receive the best available treatments and direct research to improve future outcomes.
To reliably capture diagnostic and management data on every child with new-onset heart failure worldwide. To analyze and disseminate the data acquired. To work collaboratively with other registries including ISHLT Transplant, PediMacs and PHTS. To utilize the information gathered to inform best current practice and future management strategies.
- The iPHFR is owned by the ISHLT. The actual governance of iPHFR is by the iPHFR Steering Committee which is appointment by the ISHLT Leadership. The ownership of the data remains with the submitting hospital or collective.
- Participation in iPHFR is FREE. The registry is completely funded by ISHLT.