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Boards & Committees - Registries and Databases



ISHLT 2010-2011 REGISTRIES AND DATABASES COMMITTEE


LEADERSHIP ROSTER

Chair:  Marshall I. Hertz, MD

Council Workforce Leaders:


Junior Faculty & Trainee:  Jennifer C. Matthews, MD
Heart Failure & Transplant Medicine:  Josef Stehlik, MD
Nursing, Health Sciences and Allied Health:  Fabienne Dobbels, PhD
Infectious Diseases:  Frauke Mattner, MD
Pulmonary Transplantation:  Shaf Keshavjee, MD
Pediatric Transplantation:  Richard E. Chinnock, MD
Pulmonary Hypertension:  Mardi Gomberg-Maitland, MD, MSc and Fernando Torres, MD, PA
Mechanical Circulatory Support:  Jaap Lahpor, MD, PhD
Pathology and Basic Science:  Robert F. Padera, MD, PhD
Outcomes Specialists:  Roger D. Yusen, MD, MPH and
     Maria G. Crespo-Leiro, MD
Thoracic Registry Biostatistician:  Leah Edwards, PhD
SAS Analyst:  Jaime Williamson
TII Liaison:  Kathryn A. Philibin, RN


QUICK LINKS


CONTACT INFORMATION

CHAIR

Marshall I. Hertz, MD
University of Minnesota
Pulmonary/Critical Care Medicine
420 Delaware Street, SE
MMC 398
Minneapolis, MN  55455
612-624-0999
612-625-2174 (fax)
hertz001@umn.edu

JUNIOR FACULTY AND TRAINEE COUNCIL
Registries and Databases Workforce Leader


Jennifer C. Matthews, MD
Univ of Michigan Health Systems
Cardiovascular Center
1500 East Medical Center Dr
Floor 3
Ann Arbor, MI 48109
734-214-0691
415-476-5712 (fax)
jennmatt@umich.edu

HEART FAILURE COUNCIL
Registries and Databases Workforce Leader


Josef Stehlik, MD
University of Utah School of Medicine
Division of Cardiology
30 North 1900 East, Room 4A100
Salt Lake City, UT  84132
801-585-2340
801-581-7735 (fax)
josef.stehlik@hsc.utah.edu

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NURSING, HEALTH SCIENCE, AND ALLIED HEALTH COUNCIL
Registries and Databases Workforce Leader


Fabienne Dobbels, PhD
University Hospital Leuven
Center for Health Services and Nursing Research
Kapucijnenvoer 35/4
B-3000 Leuven
BELGIUM
32 16 33 69 81
32 16 33 69 70 (fax)
fabienne.dobbels@med.kuleuven.be

INFECTIOUS DISEASES COUNCIL
Registries and Databases Workforce Leader


Frauke Mattner, MD
Hannover Medical Center
Med Microbiology & Hosp Epidemiology
Carl Neuberg-Strasse 1
Hannover, D-30625
GERMANY
49-511-532-8675
49-511-532-8174 (fax)
frauke.mattner@uk-sh.de

PULMONARY TRANSPLANTATION COUNCIL
Registries and Databases Workforce Leader

Shaf Keshavjee, MD
Toronto General Hospital
Thoracic Surgery
200 Elizabeth Street, 9 N-947
Toronto, ON M5G 2C4
CANADA
416-340-4010
416-340-4556 (fax)
Dr.Shaf.Keshavjee@uhn.on.ca

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PEDIATRIC COUNCIL
Registries and Databases Workforce Leader


Richard E. Chinnock, MD
Loma Linda University Children's Hospital
11175 Campus St.
Coleman Pavilion, Room A1109
Loma Linda, CA  92350
909-558-4130
90-494-5493 (fax)
rchinnock@llu.edu
PULMONARY HYPERTENSION COUNCIL
Registries and Databases Workforce Co-Leaders

Mardi Gomberg-Maitland, MD, MSc
University of Chicago
5841 S. Maryland Ave
MC2016, Pulmonary Hypertension
Chicago, IL 60637
773-702-5589
773-834-1764 (fax)
mgomberg@medicine.bsd.uchicago.edu

Fernando Torres, MD, PA
UT Southwestern Medical Center
5323 Harry Hines Blvd
Dallas, TX 75390
214-645-6487
214-645-6492 (fax)
fernando.torres@utsouthwestern.edu

MECHANICAL CIRCULATORY SUPPORT COUNCIL
Registries and Databases Workforce Leader

Jaap Lahpor, MD, PhD
University Medical Center Utrecht
Heidelberglaan 100
E 03.511
Utrecht 3584 CX
THE NETHERLANDS
31-30-250-6179
31-30-250-5058 (fax)
j.r.lahpor@umcutrecht.nl

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PATHOLOGY AND BASIC SCIENCE COUNCIL
Registries and Databases Workforce Leader

Robert F. Padera, MD, PhD
Brigham & Women's Hospital
Department of Pathology
75 Francis St.
Boston, MA 02115
617-525-6792
617-277-9015 (fax)
rpadera@partners.org

OUTCOMES SPECIALISTS

Roger D. Yusen, MD, MPH
Washington University School of Medicine
Pulmonary and Critical Care Medicine
660 S. Euclid, Box 8052
St. Louis, MO 63110
314-454-8764
314-454-5571 (fax)
ryusen@dom.wustl.edu

Maria G. Crespo-Leiro, MD
Hospital Juan Canalejo
Servicio de Cardiologia
Xubias 84
La Coruna 15006
SPAIN
34-981-178-304
34-981-178-299 (fax)
mcrelei@canalejo.org

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THORACIC REGISTRY BIOSTATISTICIAN
Leah Edwards, PhD
United Network for Organ Sharing
700 North 4th Street
Richmond, VA 23219
804-782-4945
edwardlb@unos.org

SAS ANALYST
Jaime Williamson
ISHLT Transplant Registry
700 North 4th Street
Richmond, VA 23219
804-782-4894
804-782-4809 (fax)
williajh@unos.org

TII LIAISON
Kathryn A. Philibin, RN
ISHLT/UNOS
Clinical Data System
700 North 4th Street
Richmond, VA 23219
804-782-4854
804-782-4809 (fax)
philibka@unos.org

COMMITTEE COMPOSITION
  • The Registries and Databases Committee shall be chaired by the Medical Director of the Thoracic Transplant Registry.
  • The leader of each Scientific Council Workforce on Registries and Databases shall serve on the Committee.
  • The Medical Director of each ISHLT Registry and Database shall serve on the Committee.
  • The Committee Chair shall appoint up to two additional members to serve as outcomes specialists.
  • The biostatistician for the Thoracic Registry shall serve on the committee.
COMMITTEE RESPONSIBILITIES
  1. Develop criteria, policies, and standards to which all ISHLT registries and databases must conform, to include the following: data field development, patient data privacy, data definitions, data collection protocols, data use protocols, data distribution protocols, data analysis, institutional enrollment, data protection, data validity and integrity.
  2. Ensure, to the greatest extent possible, uniformity across registries and databases in terms of data fields, data definitions, patient identifiers, etc.
  3. Review and evaluate proposals for registries and databases generated by the Scientific Councils, determine priorities and costs, and make recommendations to the Board regarding approval of such proposals.
  4. Oversee the implementation of new registries and databases and monitor their ongoing progress, participation rates, and cost benefit ratio.
  5. Conduct regular evaluations regarding the need to continue to operate existing registries and databases.
  6. Act as liaison between the Scientific Council Workforces on Registries and Standards and the Board to facilitate the presentation of well structured proposals for the board's consideration, with appropriate budget proposals
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