Boards & Committees - Registries and Databases




REGISTRIES AND DATABASES COMMITTEE
(Parentheses after name indicates year rotating off Committee)



COMMITTEE COMPOSITION
  • The Registries and Databases Committee shall be chaired by the Medical Director of the Thoracic Transplant Registry.
  • The Chair of each ISHLT Registry or Database Steering Committee, the biostatistician for each ISHLT Registry or Database, and up to three additional members appointed by the Committee Chair to serve three year terms shall constitute the membership of the committee.


COMMITTEE RESPONSIBILITIES:
  • Develop and revise, as needed, criteria, policies, and standards to which all ISHLT registries and databases must conform, to include the following: data field development, patient data privacy, data definitions, data collection protocols, data use protocols, data distribution protocols, data analysis, institutional enrollment, data protection, data validity and integrity.
  • Ensure, to the greatest extent possible, uniformity across ISHLT registries and databases in terms of data fields, data definitions, patient identifiers, etc.
  • Review and evaluate proposals for new registries and databases generated by the Scientific Councils, determine priorities, work with the Committee Chair to complete formal proposals, inclusive of budget, to be presented to the Board, and make recommendations to the Board regarding approval of such proposals.
  • Ensure that input from all the Society constituencies is obtained during the development of any new Registry.
  • Establish an ad hoc Implementation Task Force to oversee the implementation process for each newly established Registry.
  • Assist Society members with Registry Award and Registry Data Request submissions.
  • Provide mentorship to, and facilitate identification of appropriate mentors for, investigators interested in applying for the ISHLT Transplant Registry Early Career Award.
New ISHLT Registry Initial Application (word doc)
New ISHLT Registry Follow-up Application (word doc)


INTERNATIONAL THORACIC ORGAN TRANSPLANT (TTX) REGISTRY MEDICAL DIRECTOR and COMMITTEE CHAIR
Josef Stehlik, MD, MPH (July 2022)
ISHLT Thoracic Transplant Registry Medical Director

University of Utah
Salt Lake City, Utah, USA

ISHLT REGISTRY FOR MECHANICALLY ASSISTED CIRCULATORY SUPPORT (IMACS) COMMITTEE CHAIR
Daniel J. Goldstein, MD
Montefiore Medical Center
Bronx, NY, USA

INTERNATIONAL PEDIATRIC HEART FAILURE (IPHF) REGISTRY COMMITTEE CHAIR
Anne I. Dipchand, MD (2018)
Hospital for Sick Children
Toronto, ON, CANADA

INTERNATIONAL DONATION AFTER CARDIAC DEATH (DCD) REGISTRY COMMITTEE CHAIR
Dirk Van Raemdonck, MD, PhD
University Hospital Gasthuisberg
Leuven, BELGIUM

BOARD OF DIRECTORS LIAISON
Andrew J. Fisher, FRCP, PhD (2019)
Freeman Hospital
Newcastle Upon Tyne, UNITED KINGDOM

BIOSTATISTICIAN FOR THE TTX, IPHF, AND THE DCD REGISTRIES
Wida S. Cherikh, PhD
United Network for Organ Sharing
Richmond, Virginia, USA

IMACS REGISTRY BIOSTATISTICIAN
Rongbing Xie, DrPH, MPH (2018)
University of Alabama at Birmingham
Birmingham, Alabama, USA

AT LARGE MEMBER
Roger D. Yusen, MD, MPH
Washington University School of Medicine
St. Louis, Missouri, USA

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