Boards & Committees - Registries and Databases
ISHLT 2010-2011 REGISTRIES AND DATABASES COMMITTEE
| LEADERSHIP ROSTER Chair: Marshall I. Hertz, MD Council Workforce Leaders: Junior Faculty & Trainee: Jennifer C. Matthews, MD Heart Failure & Transplant Medicine: Josef Stehlik, MD Nursing, Health Sciences and Allied Health: Fabienne Dobbels, PhD Infectious Diseases: Frauke Mattner, MD Pulmonary Transplantation: Shaf Keshavjee, MD Pediatric Transplantation: Richard E. Chinnock, MD Pulmonary Hypertension: Mardi Gomberg-Maitland, MD, MSc and Fernando Torres, MD, PA Mechanical Circulatory Support: Jaap Lahpor, MD, PhD Pathology and Basic Science: Robert F. Padera, MD, PhD |
Outcomes Specialists: Roger D. Yusen, MD, MPH and Maria G. Crespo-Leiro, MD Thoracic Registry Biostatistician: Leah Edwards, PhD SAS Analyst: Jaime Williamson TII Liaison: Kathryn A. Philibin, RN QUICK LINKS
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CONTACT INFORMATION
| CHAIR Marshall I. Hertz, MD University of Minnesota Pulmonary/Critical Care Medicine 420 Delaware Street, SE MMC 398 Minneapolis, MN 55455 612-624-0999 612-625-2174 (fax) hertz001@umn.edu JUNIOR FACULTY AND TRAINEE COUNCIL Registries and Databases Workforce Leader Jennifer C. Matthews, MD Univ of Michigan Health Systems Cardiovascular Center 1500 East Medical Center Dr Floor 3 Ann Arbor, MI 48109 734-214-0691 415-476-5712 (fax) jennmatt@umich.edu HEART FAILURE COUNCIL Registries and Databases Workforce Leader Josef Stehlik, MD University of Utah School of Medicine Division of Cardiology 30 North 1900 East, Room 4A100 Salt Lake City, UT 84132 801-585-2340 801-581-7735 (fax) josef.stehlik@hsc.utah.edu (Back to Top) NURSING, HEALTH SCIENCE, AND ALLIED HEALTH COUNCIL Registries and Databases Workforce Leader Fabienne Dobbels, PhD University Hospital Leuven Center for Health Services and Nursing Research Kapucijnenvoer 35/4 B-3000 Leuven BELGIUM 32 16 33 69 81 32 16 33 69 70 (fax) fabienne.dobbels@med.kuleuven.be INFECTIOUS DISEASES COUNCIL Registries and Databases Workforce Leader Frauke Mattner, MD Hannover Medical Center Med Microbiology & Hosp Epidemiology Carl Neuberg-Strasse 1 Hannover, D-30625 GERMANY 49-511-532-8675 49-511-532-8174 (fax) frauke.mattner@uk-sh.de PULMONARY TRANSPLANTATION COUNCIL Registries and Databases Workforce Leader Shaf Keshavjee, MD Toronto General Hospital Thoracic Surgery 200 Elizabeth Street, 9 N-947 Toronto, ON M5G 2C4 CANADA 416-340-4010 416-340-4556 (fax) Dr.Shaf.Keshavjee@uhn.on.ca (Back to Top) PEDIATRIC COUNCIL Registries and Databases Workforce Leader Richard E. Chinnock, MD Loma Linda University Children's Hospital 11175 Campus St. Coleman Pavilion, Room A1109 Loma Linda, CA 92350 909-558-4130 90-494-5493 (fax) rchinnock@llu.edu |
PULMONARY HYPERTENSION COUNCIL Registries and Databases Workforce Co-Leaders Mardi Gomberg-Maitland, MD, MSc University of Chicago 5841 S. Maryland Ave MC2016, Pulmonary Hypertension Chicago, IL 60637 773-702-5589 773-834-1764 (fax) mgomberg@medicine.bsd.uchicago.edu Fernando Torres, MD, PA UT Southwestern Medical Center 5323 Harry Hines Blvd Dallas, TX 75390 214-645-6487 214-645-6492 (fax) fernando.torres@utsouthwestern.edu MECHANICAL CIRCULATORY SUPPORT COUNCIL Registries and Databases Workforce Leader Jaap Lahpor, MD, PhD University Medical Center Utrecht Heidelberglaan 100 E 03.511 Utrecht 3584 CX THE NETHERLANDS 31-30-250-6179 31-30-250-5058 (fax) j.r.lahpor@umcutrecht.nl (Back to Top) PATHOLOGY AND BASIC SCIENCE COUNCIL Registries and Databases Workforce Leader Robert F. Padera, MD, PhD Brigham & Women's Hospital Department of Pathology 75 Francis St. Boston, MA 02115 617-525-6792 617-277-9015 (fax) rpadera@partners.org OUTCOMES SPECIALISTS Roger D. Yusen, MD, MPH Washington University School of Medicine Pulmonary and Critical Care Medicine 660 S. Euclid, Box 8052 St. Louis, MO 63110 314-454-8764 314-454-5571 (fax) ryusen@dom.wustl.edu Maria G. Crespo-Leiro, MD Hospital Juan Canalejo Servicio de Cardiologia Xubias 84 La Coruna 15006 SPAIN 34-981-178-304 34-981-178-299 (fax) mcrelei@canalejo.org (Back to Top) THORACIC REGISTRY BIOSTATISTICIAN Leah Edwards, PhD United Network for Organ Sharing 700 North 4th Street Richmond, VA 23219 804-782-4945 edwardlb@unos.org SAS ANALYST Jaime Williamson ISHLT Transplant Registry 700 North 4th Street Richmond, VA 23219 804-782-4894 804-782-4809 (fax) williajh@unos.org TII LIAISON Kathryn A. Philibin, RN ISHLT/UNOS Clinical Data System 700 North 4th Street Richmond, VA 23219 804-782-4854 804-782-4809 (fax) philibka@unos.org |
- The Registries and Databases Committee shall be chaired by the Medical Director of the Thoracic Transplant Registry.
- The leader of each Scientific Council Workforce on Registries and Databases shall serve on the Committee.
- The Medical Director of each ISHLT Registry and Database shall serve on the Committee.
- The Committee Chair shall appoint up to two additional members to serve as outcomes specialists.
- The biostatistician for the Thoracic Registry shall serve on the committee.
- Develop criteria, policies, and standards to which all ISHLT registries and databases must conform, to include the following: data field development, patient data privacy, data definitions, data collection protocols, data use protocols, data distribution protocols, data analysis, institutional enrollment, data protection, data validity and integrity.
- Ensure, to the greatest extent possible, uniformity across registries and databases in terms of data fields, data definitions, patient identifiers, etc.
- Review and evaluate proposals for registries and databases generated by the Scientific Councils, determine priorities and costs, and make recommendations to the Board regarding approval of such proposals.
- Oversee the implementation of new registries and databases and monitor their ongoing progress, participation rates, and cost benefit ratio.
- Conduct regular evaluations regarding the need to continue to operate existing registries and databases.
- Act as liaison between the Scientific Council Workforces on Registries and Standards and the Board to facilitate the presentation of well structured proposals for the board's consideration, with appropriate budget proposals