Boards & Committees - Int'l Thoracic Tx Registry

International Thoracic Transplant Registry Steering Committee


Thoracic Registry Committee Meeting
Tuesday, April 14, 2015, 4:30 PM - 6:30 PM
Acropolis Congres Centre, Nice, France


Marshall Hertz, MD

Jeffrey D. Hosenpud, MD

Michael P. Kaye, MD

Committee Composition

  • The Thoracic Transplant Registry Committee shall consist of the Medical Director, a Senior and an  Associate Medical Director for Adult Heart Transplantation, a Senior and an Associate Medical Director for Adult Lung/Heart-Lung Transplantation, a Senior and an Associate Medical Director for Pediatric Heart Transplantation, a Senior and an Associate Medical Director for Pediatric Lung/Heart-Lung Transplantation,    an Associate Medical Director for Outcomes, an Associate Director for rgan exchange organization (OEO) Relations, an Associate Director for Biostatistics, and staff from the data coordinating center contracted to manage the registry.
  • The Medical Director shall be appointed by the Board for a five-year term, renewable once.
  • Committee members shall be appointed by the Medical Director and approved by the Board for 5-year, non-renewable, staggered terms. In the first 2 years they will overlap and work along with the current Associate Director. In their last 2 years they will provide mentorship to the incoming Associate Medical Director.
  • Before the appointment of a new committee member is due, relevant Council Chairs will be approached and asked to solicit nominations from among the Council’s membership for appointment to the Committee. Such nominations shall be submitted to the Chair for consideration.
Medical Director Responsibilities:

  • The Medical Director shall serve as an ex-officio, non-voting member of the Board.
  • The Medical Director may receive an annual stipend established by the Board of Directors.
  • The Medical Director must report to the Board, to include the following:
    • Summary of the prior year data collection
    • Status of deliverables from the prior year
    • List of publications arising from the registry during the prior year
    • Assessment of need to continuing to operate registry
    • Plans for the coming year including proposed deliverables / publications
  • The duties of the Medical Director shall include maintaining the scientific integrity of the Registry, working within the budget as set by the Board of Directors, and achieving the goals and objectives set for the Registry.
  • The Medical Director shall develop and form relationships with governmental and professional organizations worldwide overseeing thoracic organ transplantation and transplant data collection.
Committee Responsibilities:

  • Oversee the operation of the registry and monitor its ongoing progress, participation rates, and cost-benefit ratio.
  • Conduct regular evaluations regarding the need to continue to operate the registry.
  • Identify and revise, as needed, data collection fields and definitions that facilitate the collection of appropriate information.
  • Interface with individual centers and organ exchange organizations to encourage submission of data to the Registry.
  • Interface with individual centers and organ exchange organizations to enhance compliance with data collection.
  • Review abstracts and manuscripts generated with the use of Registry data prior to submission for peer-review/publication.
  • Review results of data collection and generate regular Annual Data Reports.
  • Authorize, review, and approve the submission of requests for access to the data for scientific studies.
  • Initiate and facilitate data analysis projects.
  • Oversee compliance with data use agreements.
  • Achieve the goals and objectives established annually by the Board for the Registry.

Josef Stehlik, MD, MPH (2017)
University of Utah
Salt Lake City, Utah, USA

Josef Stehlik, MD, MPH is an Associate Professor of Medicine at the University of Utah School of Medicine. Dr. Stehlik received his medical degree from Charles University in Prague and Masters in Public Health degree from Harvard School of Public Health. He completed his training in Internal Medicine and in Cardiovascular Diseases at Allegheny General Hospital, MCP*Hahnemann University and advanced training in Heart Failure and Transplantation at the Cleveland Clinic. Dr. Stehlik has been on faculty at the University of Utah since 2004 and serves as Medical Director of the Heart Transplant Program at the University of Utah Hospital and the Salt Lake City Veterans Affairs Medical Center. He has been active in clinical work, education and research in the areas of advanced heart failure, heart transplantation and mechanical circulatory support.


Stuart C. Sweet, MD, PhD
St. Louis Children's Hospital
St. Louis, Missouri, USA

Lars H. Lund, MD, PhD
Karolinska University Hospital
Stockholm, SWEDEN

Bio coming soon...

Roger D. Yusen, MD, MPH
Washington University School of Medicine
St. Louis, Missouri, USA

Roger Yusen, MD, MPH, is an Associate Professor of Medicine in the Division of Pulmonary and Critical Care Medicine at Washington University School of Medicine (WUSM) in St. Louis, Missouri, USA. He is a lung transplant pulmonologist and the medical director of the lung volume reduction surgery program at WUSM and Barnes-Jewish Hospital. He focuses his research efforts on technology assessment in pulmonary and transplant medicine.

Anne I. Dipchand, MD
Hospital for Sick Children
Toronto, Ontario, CANADA

Anne Dipchand, MD FRCPC, is Head of the Cardiac Transplant Program and a Staff Cardiologist at the Hospital for Sick Children in Toronto.  She is also an Associate Professor of Pediatrics with the University of Toronto.

Joseph W. Rossano, MD
The Children's Hospital
Philadelphia, PA, USA

Dr. Rossano attended medical school at the University of Arizona College of Medicine and Seattle Children’s Hospital for his pediatric residency. He moved to Houston for pediatric cardiology fellowship training and there underwent additional fellowship training in cardiac intensive care and heart failure / transplantation. While on the faculty of Baylor College of Medicine and Texas Children’s hospital he obtained Masters of Science degree in clinical research. He moved on to the Children’s Hospital of Philadelphia and the University of Pennsylvania where he is the Medical Director of the Heart Failure and Transplantation Program and the Interim Medical Director of the Cardiac Intensive Care Unit. He is actively engaged in clinical outcomes research.

Christian Benden, MD
University Hospital Zurich
Zurich, Switzerland

Dr. Christian Benden is the Medical Director of Lung Transplantation at the University Hospital Zurich and a Reader in Pulmonology and Transplant Medicine at the University of Zurich, Switzerland. Dr. Benden completed his pediatric training in Hannover (Germany) and London (United Kingdom). In addition, he trained in Pediatric Pulmonology and received specialist training in lung transplantation in London and Zurich. Dr. Benden is a well-recognized Pediatric Lung Transplant Physician, and a former Chair of the ISHLT Scientific Council on Pediatric Transplantation. His research interests include clinical aspects of lung transplantation, particularly in children and adolescents, experimental aspects of chronic lung allograft dysfunction, and cystic fibrosis lung disease.

Samuel B. Goldfarb, MD
The Children's Hospital of Philadelphia
Philadelphia, PA, USA

Bio coming soon...


Bronwyn J. Levvey, RN, Grad Dip Clin Ep
Alfred Hospital
Melbourne, AUSTRALIA

A/Prof Bronwyn Levvey is the clinical lung transplant nursing team leader of the Lung Transplant Service at The Alfred Hospital, Melbourne Australia. Appointed as Adjunct Clinical Associate Professor in the Department of Medicine, Faculty of Nursing & Health Sciences at Monash University (Melbourne) in 2008 in recognition of her strong commitment to transplantation nursing education and clinical research, she has authored or co-authored more than 60 peer review scientific publications. Since 2005, a major focus of A/Prof Levvey’s clinical research has been the successful evolution and development of Category III DCD Lung donation and transplantation in Australia. An ISHLT member since 2000, she is the current National President of the Transplant Nurses Association (TNA) of Australia, a member of TTS and the Transplantation Society of Australia & New Zealand (TSANZ), and is a member of several Australian government organ donation and transplantation advisory boards.

Bruno M. Meiser, MD
University Munich/Grosshadern
Transplant Center Munich

Bio coming soon...

Leah Edwards, PhD
United Network for Organ Sharing
Richmond, Virginia, USA

Bio coming soon...

Jaime Williamson
ISHLT Registry
Richmond, Virginia, USA

Bio coming soon...

Kathryn A. Philibin, RN
Richmond, Virginia, USA

Bio coming soon...

Anna Kucheryavaya, MS
United Network for Organ Sharing
Richmond, Virginia, USA

Bio coming soon...

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